Levi update

Thursday, December 21, 2006


10:22 PM - No MRI
Current mood: exhausted
Category: Life

No MRI. Drove all the way up there, making poor Levi sit in his seat for hours, then starving him all morning and half the afternoon. They poked him five times and his veins blew each time. :( He cried and screamed. It was terrible to watch I couldn't imagine what he was thinking. I told them no more. First, 2 different nurses tried (they do this all day every day) then a specialized team of 4 came in and tried 2 more times and still didn't work. I left mom with Levi after the 3 tries and before the team came in. I hadn't eaten all day either and not only watching my poor baby go through that but having to help hold him down and lying to him about how it's going to be all right...I couldn't do it again. So I went and grabbed some quick food and came back up. I really didn't expect the team to have been there and gone because nothing happens quickly there but they had. My mom was in tears. Levi, of course, had been in tears and was all red in the face. So no MRI. No CT. Went up and talked to the neurologist and he gave me orders to give to our local ped and have it done locally in January. He hasn't had an MRI since July and he's suppose to get them every 4 months.

He fussed and cried in his sleep starting in the early hours. You could tell he was having nightmares. I just hate it!

At the RMD house we did meet a little girl who was smaller than him. Remember, he's 2.5 years old but is only about the size of an average 18 month old. This little girl who wears 2t/24 mo size clothes is 4+ years old! Her name is Destiny and was just a little wildfire. Mom got pictures of them standing together and both of them sitting on my lap.

We also got a picture of Destiny's father asleep on the couch. Not just asleep but sitting on his butt, bent at the waist with his head between his knees snoring. :X We were cracking up!

I'm exhausted. Livie is clingy from not seeing me and Levi is clingy due to the hell he's been through. I just want to cuddle with my hubby.

I think dh is bringing me some food!

Pics from the Ronald McDonald House in December 2006.




This is Destiny. She's a healthy, never really been sick 4+ y/o. She wears 2T/24 month.








Destiny's dad ASLEEP on the couch.