18 months cancer free

Been a long time since I posted! Just wanted to give a little update that Levi is now 20 months old and 18 months cancer free! We just got back from another trip to Chicago and his MRI was clean.

We are concerned about his lack of weight gain. He's gained about 2 lbs since he was 7 months old. He weighs about 21 lbs. And he's not really getting taller. They ran a gamut of blood tests to see if there was any obvious reasons and there wasn't. I only got a voicemail and the nurse said it was all normal except for one test but it was minimal and to call her back if I want to discuss. She was very unconcerned. So I will call her Monday.

We have to go back for about a week sometime in the next few months. He still has a hole in skull that's pretty good size. There is no protection between his brain and the skin. In fact, if the surgeon didn't put in a fake layer of dura matter then the brain is probably stuck to the skin which isn't good. Anyway, they're going to put in a steel mesh and plaster plate to cover the hole. Last time we discussed this they wanted to wait til he was 5 years old. Dh and I are totally not going for that!



Levi has grown so much! He walks, runs, climbs, jumps. He says mama, hi and bye. Oh and eeeyesh but we haven't deciphered that yet. And he says "OH" and makes this funny face.

Time to get to bed.